Adhesion Related Disorder-Raising World Wide Awareness and Education!
Introduction
Knowledge Is Power- YOUR Power Comes From Education, Support and The Experience of Others With ARD.
Here you will find the resources and tools to BE YOUR OWN BEST Dr.!
Post-surgical adhesions often occur following pelvic and abdominal surgery.
Data has suggested that 67% to 93% of patients will develop adhesions following abdominal/pelvic surgery!
It is imparative that all persons afflicted with ARD maintain a file at home encompassing ALL aspects of thier ARD interventions and needs.
You will need to secure the following material for your in home files:
Task
Names and contact information of all medical professionals and facilities
Doctors Office Notes.
ALL diagnostic procedure reports.
Emergency room visits.
Keep a list of all medications.
Secure copies your lab work.
List all supporting medical, social, psychological and Governmental interventions.
List all outside assistance you have had in relationship to your home care or health needs in your home.
Process
Here is the process by which you will build your home based medical file for ARD. Always try to have someone assisting you with this process
so that it is as comprehensive as possible.
The most important assignment for persons afflicted with “Adhesion Related Disorder (ARD)” is to become as educated and informed about ARD as they can be.
It is also imperative thatwilling family and friends of ARD victims also become as informed and educated about this disorder as possible. It is NEVER just the person impacted with ARD that suffers alone as it impacts every area of their life, and the lives of their extended families members as well.
Here is the best start we can share with you as you try to gain some control over a life consumed by pain, suffering, confusion, anger and the feeling of being lost and alone!
Start here and you will find that,
“Your Not Alone!”
1. With a partner, write down which medical reports you currently have in your possession, and which reports you need to secure, such as:
Operative Reports, Dr. Office Records,Lab Reports, Diagnostic Tests Results, Emergency Room Visits and any other type of physical/medical intervention you had for your ARD symptoms.
2. With a partner, list all the medical care providers you have visited in relationship to your ARD needs, such as: Physicians, Surgeons, GI Specialists,
Dieticians, Psychologists/Psychiatrists, Physical therapy, Pain Management, etc. Record full names, practice specialty, contact information and dates you were seen by the providers.
3. With a partner, list all non medical care providers you have visited or utilized in relationship to your ARD needs, such as: Dieticians, disability specialists,
legal counsel, home health care,family members taking care of your home care needs, advocates, personal counseling, other sources of non conventional interventions such as: Acupuncture, massage therapy, etc.
Record full names, practice specialty, contact information and dates you were seen by the providers.
4. With a partner, list all the Government Agency’s such as: Dept. of Social Security, Dept. of Vocational Rehabilitation, Dept. of Social Services
you have visited in relationship to your ARD needs. Name the facility, contact information dates of visits and type of intervention.
5. With a partner, list all medications you are currently taking, prescriptions as well as over counter medications. Catalog the medical care provider who prescribed them to you,
the date prescribed, name of medication, dosage prescribed, times you take each medication, and your reaction to the medications. List as best possible medications you have taken in the past and record them the same as your current medications.
You can also contact ALL pharmacies for a list of prescription medications you have presented to them for filing and secure those records. (For prescriptions yet to be written, photo copy them and keep the copies in
your file as that will suffice for your medication logs.)
6. Have a calendar available that will be used to record everything you do in relationship to your ARD. Record all appointments, also record on the calendar how you feel each day,
what medication, or combinations of medications do for or against you. Record on this calendar what medical records you have requested, the facility you requested them from, who you spoke to, and when you received them and placed in your
home-medical file.
The following links will provide you with the most comprehensive information and material avaiable through the Internet on the subject of ARD.
You are warned that the information found in these links is NOT to be taken as medical advice, but simply as an education as what YOU can do to help yourself receive the best intervention for your ARD symptoms, as well as to protect yourself
from future harm when seeking intervention for your ARD symptoms.
" YOUR OWN BEST DOCTOR!"
Adhesion Related Disorder Information
International Adhesions Society
National Institue Of Health * Womens Surgical Group * Go to the ardchat.com.
